Pulse InfoFrame

About Pulse InfoFrame

Pulse Infoframe is a global healthcare company and evidence-generating platform located in the Uplands neighbourhood of London. It serves biopharmaceutical companies, research institutions, and patient advocacy groups by providing a platform to collect and share high-quality real-world data. The company focuses on accelerating research for rare diseases, cancer, and chronic conditions, with the goal of driving better patient outcomes and advancing personalized medicine. The company offers a cloud-based platform designed to integrate and analyze diverse data sets, including electronic health records, claims, genomics, and patient-reported outcomes. Specific solutions include healthie 2.0, Rare Central, and Discovery. Their platform supports the structured collection of data that can be mapped to standards such as the Observational Medical Outcomes Partnership (OMOP) and the Clinical Data Interchange Standards Consortium (CDISC). These services are designed to meet regulatory requirements for the FDA and EMA while ensuring GDPR and HIPAA compliance. Founded in 2011 by Dr. Femida Gwadry-Sridhar, a pharmacist and epidemiologist, Pulse Infoframe was created to address the lack of standardized real-world evidence in complex disease populations. The company emphasizes that it does not outsource its science, utilizing an in-house team with decades of experience in epidemiology and clinical trials. The team has contributed to over 200 peer-reviewed publications. The organization also maintains a Patient Advisory Board and a Scientific Advisory Board to ensure that research questions remain focused on the needs of patients and caregivers.