Bethany’s Hope Foundation

About Bethany’s Hope Foundation

Bethany’s Hope Foundation is a not-for-profit charity located on Wellington Street in the downtown area of London, Ontario. The organization serves as a source of comfort, information, and guidance for families worldwide who are dealing with metachromatic leukodystrophy (MLD), a rare and fatal neurodegenerative disorder. The foundation was established by David and Lindey McIntyre after their daughter, Bethany, was diagnosed with MLD. The organization operates in honor of Bethany and focuses on raising funds and promoting research to find a cure for the condition. The foundation's work has been recognized with the Meritorious Service Cross, an award presented to the Mcintyres for their remarkable contributions and efforts in establishing local research for MLD. The foundation provides resources for families through its "Team BHF" initiative and hosts various events to support its mission. It also maintains connections with research partners, such as Dr. Genevieve Bernard, to provide study information. People can get involved with the organization by becoming volunteers, special donors, or participating in foundation events.